Superhero SupernovaI woke up a few minutes before my alarm went off at 2:30am, and changed into the “space babe” superhero outfit that I’d packed to wear for my Greeter shift. I had found the base of this costume at a playawear sale in Berkeley a week or so before the burn. It was a zip-up, silvery black spandex bodysuit thing with short sleeves and super short shorts, with a long red spandex cape attached at the shoulders and six large round turquoise plastic “buttons” down the front that each had a circular infinity light inside of them. It was something I originally pulled out of the rack and looked at and went “naw, I can’t possibly wear that, it’s too small, too revealing, not flattering to my big butt and thighs”. But some other little voice inside me said “aw come on, just try it on and see...besides, every time you think some piece of apparel or accessory is just too outrageous, you wind up loving it later.” So I tried it on and it did fit (yay stretchy spandex), and it was in fact revealing but I decided to experiment with it anyway. I added black, fringed fingerless gloves, black thigh highs, sparkly silver UGG boots, the silver and turquoise crown I made at Gaming Camp and big star earrings. And thus was the superhero version of Supernova born. As it turned out, the night was mild and I wasn’t even cold so I didn’t have to put on a jacket over the outfit, and the light ups in the bodysuit were perfect for the night part of the shift. I wish I had some pictures of the moment but I will always remember how good it felt to be standing tall and proud at the Gate at sunrise with my cape flying in the wind behind me.

Greeter Stations with bellsAnd being a Greeter turned out to be super fun! Anji, Kathy, Michelle and I rode our bikes out to the Gate and got there early for our shift, so we sat around for a bit in the Greeter station and got oriented by the very nice shift leads, and then when it was time, we all sort of randomly picked a spot in the Gate lineup to get started. We overlapped with the previous shift for a few minutes and watched how it was done, and then we were on our own for four hours. The Greeter before me gave me some great stickers that he’d made to keep handing out to people along with the usual What-Where-When guide, map and other materials. The traffic was pretty slow (it being so early in the morning) but pretty much everyone who came through was super stoked to have finally arrived and happy to chat and talk and do some ritual if they were first-timers (virgins).

I told virgins that we had two different Burning Man rituals for them to Participate in (they could lie in the dust and do a dust angel or some sort of dust encounter, and they could ring the bell next to the gate and shout “I am no longer a Burning Man virgin!”), and invited them to try one or both. Every virgin I talked to at least rang the bell, and many of them also did some sort of dust angel. I also told them that since the theme this year was Radical Ritual, they were particularly lucky to be able to do their virgin rituals at this burn. I told them this because I wanted to make the moment special and meaningful for them. (One of the gifts I like giving people at the burn is an awareness of/appreciation for a small, positive moment that they’re in.) I also encouraged people to Participate in the ritual of hugging the Greeter and did my best to welcome each and every person with enthusiasm and excitement. (I told people “oh man, I’ve been waiting for you for so long, and I’m so glad you’re finally here! I’m so glad to see you! Welcome home!”)

Supernova and Anjanette at the Greeter Station at sunriseAnji was in the Greeter line next to me and she and I had fun playing around with trying to get incoming cars to come to our own line and not the other person’s. I would gesture towards the car or RV like I was trying really hard to pull it towards me with invisible ropes and then tell them when they got to my line “did you see that? I totally moved the car with my mind!” It made people laugh and it certainly entertained me. I asked people if they knew where they were going to in the city, and I gave people some PSAs about the heat we’d been experiencing and warned them to take it easy and watch for dehydration (and come by and get water from Pink Heart if they wanted). Other than that I answered any questions they had, gave them their materials and then sent them on their way. I particularly remember greeting an entire RV full of 7 guys both young and old, who turned out to be a rock band called “Daring Greatly” (isn’t that a great name?) that was coming to perform all over the burn. Many of them were virgins and they had a fun time doing all the rituals. I told them about Pink Heart and our water and ice cream and encouraged them to come by.

Julia Michelle Kathy Anjanette at Greeters StationThe four hour shift went by pretty fast, and all of us agreed it had been super fun and we’d do it again next year. After we were relieved we sat around the Greeter station for a bit waiting for the porta-potties to be cleaned so we could use them before we headed back. I will admit that the Supernova superhero bodysuit was particularly difficult to use the potty in, but I eventually managed. (You also just get a lot less fussy about cleanliness and hygiene when you’re out there in the desert. You kind of have to.) We went by Center Camp on the way back to get some drinks (I had a lovely iced Yerba Mate), and ran into Mom and Mama Doody and her friends Kathy and Katherine there, which was a fun coincidence. We didn’t stay long since we were pretty tired, but we did manage to see a few cool art pieces on the way back to Pink Heart.

Once we got back to camp, I changed out of my Supernova superhero outfit and puttered around for a bit and then finally laid down for a nap because I had another volunteer shift at Arctica (the ice-selling place) coming up at 3 that I had to leave for around 2ish. Thank goodness our yurt had an A/C unit and was still relatively cool on the inside so I could do that. (Mid-day naps really saved my butt this burn.)

Anjanette and Supernova Greeting at ArcticaI changed into a unicorn outfit for our Pink Heart Arctica shift (I figured white was appropriate for Arctica) and headed over with Josh and a bunch of other Pinkies. Just like last year, I was a Greeter for this shift also (greeting and welcoming people is one of my superpowers, after all), and also just like last year I was stationed right at the entrance to the Ice Dome. So I fell into the same shtick as last year, where I would welcome and joke and tease and ask people if they were “ready” (really I just had to make sure they were ready with their order so that they wouldn’t hold up the line once they got to the cashiers, but as is my way I wanted to make it a metaphorical question and a perspective shift as well). I would say “Are you ready? Are you clear? Clear as crystal? Do you know what you want? Are you focused, prepared, and confident? Because you know, ready people get what they want. And I want you to be successful here and get what you want.” People would laugh and say they were ready and I would say “okay, ready people cross the line!” and invite them to step over the threshold into the dome. At a certain point there was virtually no line and I would greet people by saying “guess what? I have an awesome gift for you. Check it out: no line. Savor this moment and remember that sometimes things really do work out in your favor.” (Again, the gift of awareness/perspective and assistance appreciating a moment.) We all had a good time “pinking up” Arctica and we got lots of tips and ice to bring back to camp when we were all through.

Headspace at night outside Pink Heart for the Homecoming DanceAfter we got back to camp from the Arctica shift, there was a camp dinner and a camp meeting, where we all squeezed into our kitchen/chill area and talked about All The Things. Anji and I had planned on doing a “newbies orientation/ice breaker” afterwards but the meeting had so much info and went so long that we said never mind. After that Josh and I took a shower in our newly remodeled Pink Heart shower (I didn’t really need a shower yet but Josh hadn’t had a shower since he’d been there for build, and it seemed like a good opportunity and experience to share), then we changed into night clothes and went and hung out on Headspace for a bit for the Headspace Homecoming dance, and hung out in frontage for a while too. I think I made it until around eleven or midnight and then I went to bed because I had a workshop to lead the next morning at 10 and I didn’t want to be cranky tired.

 

[Radical Rituals at Burning Man: Preamble and Prologue]

[Radical Rituals at Burning Man: Part 2]

[Radical Rituals at Burning Man: Part 3]

[Radical Rituals at Burning Man: Part 4]

[Radical Rituals at Burning Man: Part 5]

[Radical Rituals at Burning Man: Part 6]

[Radical Rituals at Burning Man: Part 7]

[Radical Rituals at Burning Man: Part 8]

[Radical Rituals at Burning Man: Part 9]

[Full set of Radical Ritual pictures on Facebook]

 

Burning Man 2017 - Radical Ritual - ticketI’m trying something new this year, and pushing to get my Burning Man reflections and wrap-up blog posts done in the first few days after I get home, instead of weeks later. I didn’t keep a journal at the burn like I usually do (because reasons, none of which are particularly compelling), so I am feeling some sense of urgency to try to remember and set down as much as I can while I still have a little dust left around me. Not letting it sit and stew for a few weeks may mean that the lessons and themes from this year’s burn are still a little unclear, but perhaps doing this write up will help to clarify them.

As usual though, you are welcome to click here if you want to just skip to the end of all this detail and read the list of lessons and takeaways, and click here if all you want to do is look at the pretty pictures with captions. And if you are unfamiliar with Burning Man in general, you can go read some of my initial entries from 2011 in which I do lots of ‘splainin’, or click here to go to the official Burning Man web site which has more info and content and things to look at than you can possibly imagine. (But don’t get lost, come back here eventually!) 

It was another busy overwhelming summer for me and especially for Josh, so as soon as The Game Academy summer camp finally ended in early August we spent a few weeks frantically prepping and packing All The Things (as Josh commented, we bring the equivalent of a small apartment out to the desert with us every year, because we are glampers and unrepentant just-in-casers). Once again Josh decided to go up early to playa (he left Tuesday with Anji) in order to help build camp, and I stayed behind to get the kids started with Back-to-School and finish the last few pre-burn to-dos. Luckily we didn’t have any major burn projects to work on this year (Josh had to do some fixes to the water bar; I made another scallop coat and put together a little Pink Heart gifting ritual, which I’ll get to in a bit) so it was really “just” getting all our stuff together and loaded (which is harder than it sounds because as I said above, it’s a LOT of stuff).

Emily and Julia at the rest stop on the way to RenoAnyway...Saturday morning Mom and I packed our coolers and the few remaining things that didn’t go on the truck with Josh and Anji into our trusty minivan and left on Saturday afternoon to head up to Reno to stay at the Silver Legacy. We met up with our Pink Heart friends Ari and Mel there on Saturday evening and had a fun dinner and hangout time with them. We all decided to get up at 4am on Sunday morning (the gate had already opened at midnight) and have breakfast and get on the road by 6am. We caravanned with Ari and Mel and stopped at our traditional Love’s travel stop in Fernley for gas and last minute snacks and then got on the road to Black Rock City by around 7am. The traffic in to Black Rock City was surprisingly light (took us about 2.5 hours from Fernley to the gate, including a brief potty stop) and we were all super excited to hear BMIR (the Burning Man radio station) announce that the wait time at the gate was “only” about 2 hours. As it turned out, it took us closer to four hours from pavement to camp, but it wasn’t a bad wait. For me the real start to the burn is always in the gate line, where we all get to “practice” the kind of interactions we want to have and identities we want to inhabit for the week while we are still relatively free of other distractions.

Reid and Julia playing handpan in the gate lineSo as it turned out, right as we pulled up to the end of the line of stopped cars after jouncing over the dusty gate road at 5 mph, I was gifted with my first taste of playa magic: one of the people in the car in front of us turned out to be my handpan buddy Reid. I asked him if he had brought his handpan, which he had, so we sat down right there in the dust and jammed on our handpans. Ari even joined us for a bit on his djembe. It was awesome!

We met some other cool people in line too, and had some nice conversations. I particularly remember a pair of Spanish guys I spent some time talking to, one of whom I wound up giving a playa name to (because he asked me to). I asked him some questions about what was up in his life right now, and what he was working on for himself at this burn, and he started talking about how he was always doing things for other people and how he wanted to start paying more attention to himself (I’m totally paraphrasing here). So I gave him a couple of ideas and then we settled on “O2”, which stood for oxygen (because we were talking about oxygen mask theory, where you have to learn how to put your own mask on before you can help others with theirs). His name was Alberto and so the pun of “o, too” was kind of neat also.

We finally got to camp some time around 1:30 or 2, and were able to pull right in and hug people and start unloading. It was beastly hot though, so we didn’t do a whole lot of schlepping and we were encouraged by Josh and others who had been there for days and were used to the survival siesta schedule to wait to put up Mom’s tent (which technically was already up, but had to be moved elsewhere). So I put my few things into the yurt which Josh had so nicely set up and prepared for me, and took a quick look out at the frontage and the playa around us, and mostly ran around hugging people and saying hello. I was really happy to see Josh (it was his birthday!) and also all the other Pinkies I knew. It felt great to be home with my PHamily, and to be so heartily welcomed by so many people I was excited to see.

Julia and Anjanette and Kathy on top of HeadspaceEven though the heat and the dust and the pinkness and of course the people made it feel like Burning Man, it took me a while to really feel like I had arrived. That whole first day I’m usually all discombobulated from switching modes (not to mention switching climates). I finally started to feel like I was really there late in the afternoon on Sunday, when I was standing on top of Headspace (Pink Heart’s amazing art car) and looking out over the city (the Headspace folks had a bunch of us come on board and jump up and down a few times so they could do some weight testing). Kathy and Anji and other sweet friends were there with me and I was able to look around me at all the familiar/unfamiliar dusty places and people and really arrive.

Some time after that Josh and I (and another Pinkie friend, Bryan I believe) helped Mom move and set up her tent but we couldn’t find the rebar puller so we couldn’t put up her EZ-up shade over it. There was a camp dinner, and some fun Pinkie reunion time, but we didn’t do much else on Sunday evening (even though it was Josh’s birthday), because we were so tired from the intense heat and the remaining bits of set up. Plus I had an early morning Greeter shift that started at 4am so I kept it mellow that night. Josh and I retired to our yurt and snuggled and slept for a few hours until it was time for me to get up and meet up with Anji, Michelle, and Kathy so we could bike all the way out to the Greeter station for our volunteer shift.

 

[Radical Rituals at Burning Man: Part 1]

[Radical Rituals at Burning Man: Part 2]

[Radical Rituals at Burning Man: Part 3]

[Radical Rituals at Burning Man: Part 4]

[Radical Rituals at Burning Man: Part 5]

[Radical Rituals at Burning Man: Part 6]

[Radical Rituals at Burning Man: Part 7]

[Radical Rituals at Burning Man: Part 8]

[Radical Rituals at Burning Man: Part 9]

[Full set of Radical Ritual pictures on Facebook]

 

Not that I always make excuses for not blogging as a way to start a blog entry (ok, fine, so maybe I do), but I haven’t had much time or spoons for blogging this past month or so, because I’ve been so busy going to various community events. Over President’s Day weekend our family went to DunDraCon (a gaming con with lots of roleplaying games that we’ve been going to pretty consistently since 2009), and then the week after that I went to Pantasia (a handpan gathering that I went to for the first time last year). Then a couple weeks after that I went out to Stinson Beach for a writing retreat and then to FOGcon (a writer’s con that I’ve also been going to since its inception in 2010, with the exception of last year during my chemo treatments). Going to three different big events which correspond to three different identities for me (and which represent three different communities I belong to) has gotten me thinking about how being a member of multiple communities has been a constant refrain in my life. And since this is my solipsistic playground, it made me want to write a blog post about it. So here are some thoughts about being multi-communal (is that even a word? It is now.)

Without going into too much analysis of what makes a community (a group of people organized around similar interest and/or activity) or what counts as community involvement (going to events, participating together in activities, talking about said activities, getting to know people in some amount of depth even outside the shared activities), I’ll say that I participate in and feel like a member of the following communities:

  • SFF writers/readers
  • Burners (and specifically my Pink Heart “PHamily”
  • Handpan players
  • Dickens Faire participants (and specifically Paddy West)
  • Rodef Sholom congregants (and these days, specifically the Chevra Kadisha and the Board of Directors)
  • Dixie District parents

(There are other events I regularly participate in; in addition to regular friends and family events and holidays, there are gaming cons, Maker Faire, Edwardian Ball—this one is kind of a mashup of the Faire and Burner communities for me—book group, etc. There are also groups I am loosely a member of: high school/college alumnae, Appleberry/Marinwood neighborhood, Marin School parents, etc, but these aren’t quite at the level of community for me yet. I feel fondness for the people who participate in those activities or are members of those same groups, but I don’t feel like they are “family” in the same way as I feel the others are. And yes, “family” is a whole other round of definition that I’m going to dodge here.)

Most of these communities have specific events (or at least regular activities) that I have made a part of my yearly cycle, which allow me to touch base with other like-minded folks in those communities and keep relationships going. More importantly, though, attending events (or regular activities) allows me to embody, encourage and fuel a particular identity facet for myself. Going to a writer’s con makes me feel like a writer; going to Faire every weekend for 6 weeks makes me feel like an actor and more specifically a Paddy Wester and part of the Faire family; going to a handpan gathering makes me feel like a musician, and so on and so on. I really like being part of all these communities at the same time—I feel like I gain a richness and a more complex understanding of how people are (and who I am, embedded as I am) from having multiple points of view. Of course many of those points of view are overlapping and synergistic, especially the creative communities like Burning Man and Faire or writers and handpanners.

Interestingly enough, most of these communities are fairly new ones for me. The Dixie parent and writer communities probably go back the farthest (I’ve been a Dixie parent since 2006, and my 10th anniversary of going to Viable Paradise is coming up this fall...and I started going to cons in 2008). I’ve been a member of Rodef for much of my life, but I think really I have only been particularly active since maybe 2011, which is when I think the Chevra Kadisha started). I’ve worked at Dickens Fair since 2013 (though I of course also have Faire friends still from the Ren Faire/St. Cuthbert days 20+ years ago), and been a Burner since 2011, which makes it almost 7 years now (and we’ve been Pink Heart Campers for the last 3). I’m just under two years in for the handpan community, though it’s feeling like I’m definitely growing that. This particular period of multi-community involvement roughly corresponds to the period of identity work that has been ongoing since I left my Consumer Products Licensing career and started working for myself (first as a web solutions business owner and then as an independent creative).

With all those communities to be a part of, it would appear that I’ve traded depth for width (although I think that I’ve been able to go pretty deep in at least some of those communities). I never do spend all my time in one place, and the price of being active in so many places is that I can only give each community so much of my time and attention. But I seem to be juggling these 6 (plus my extended family/friends network) reasonably well. Plus, lately I have also realized that this “trading depth for width” tendency is part and parcel of the identity work that I’ve been thinking and talking about for years now (oh hi, midlife crisis). You know, that thing where the high-stakes struggle I was having to try to correctly identify the “one bright shining star” that I would spend my life following actually turns out to be quite easily and comfortingly resolved by accepting that my identity (and “career”, such as it is and has been) is not singular but rather made up of a whole constellation of sometimes related, sometimes disparate things. Clearly, that identity work process seems to be reflected in my interest in (and ability with) juggling these multiple, varied communities.

So here I am, reminding myself of this lesson, yet again: I, like all of us, contain multitudes (to paraphrase Whitman), and that is a good thing.

Danger: Spoon ShortageI’ve been thinking a lot about Spoon Theory lately, which made me realize I’d never talked about it here on Parentheticals. For those who don’t know, Spoon Theory is a metaphor used by the disability community to explain what it feels like to have a limited amount of energy available for basic tasks of daily living and how it is more difficult to replace or regenerate that energy if one is dealing with a disability or chronic illness than it would be for others. (A “spoon” in this metaphorical sense just refers to “a unit of energy”, not an actual eating implement.) People use this metaphor to express various ideas about having energy, running out of energy, safeguarding one’s energy, spending one’s energy, etc. So one might say, for example, “I wish I could go out to that event tonight, but I am all out of spoons.” Or, “It took almost all my spoons just to shower and get dressed today.” Or, “I used all my spoons up yesterday and I don’t have enough back to do that today.”

When I was going through the active phase of my cancer treatments, with all the chemotherapy and surgeries, I was definitely much more spoon-deprived than I was used to being. Of course it made sense that all the difficult physical demands of killing cancer cells and re-sculpting my body would take a lot of spoons, and it was not surprising that I found I needed to hoard my spoons and spend them only (or at least mostly) on self-care and recovery activities (however broadly or personally defined those activities may have been in my specific case).

But then I got better, and after a while the physical demands eased and I found my spoons didn’t run out so fast. I found I could go back to spending my spoons on activities and projects besides self-care and daily living, like I had been used to doing. So of course, I did. And I’m happy to report that physically, my stamina and spoon supply seems to be nearly back to normal. (If I had to estimate, I’d say I’m at about 85-90%.)

But now...now I’m realizing that spoons as a metaphor for units of energy doesn’t only apply to physical energy, it also applies to mental and emotional energy. And I’m still lower on spoons in those areas than I used to be (or than I want to be). Mentally I’m getting better, though I still struggle with some concentration and memory issues and my stamina for doing intellectual work is still somewhat lower than usual (which is a bummer for writing, though I’m pushing through and trying to spend spoons on it as often as I can, because that’s still a major priority for me). Emotionally though, it’s even more of a struggle. I find myself in a place where I’m seriously low on spoons, both because I’m spending a lot and because they’re slow to get back. It’s like maybe I loaned all those spoons to my physical silverware drawer, or maybe that they’re still in the dishwasher and the dishwasher doesn’t get run everyday so I have to wait longer to get them back.

Metaphor torturing aside, I’ve found that it’s often been the pattern that once the physical demands lessen, the emotional ones surface to get their turn, and that seems to be what’s happening now in this phase of my cancer recovery. I’m still dealing with waves (sometimes larger, sometimes smaller) of grief, anxiety, depression and anger. And because I run out of spoons faster, my resilience is low; I’m less flexible, less forgiving whenever things go wrong or just go in a way I didn’t expect (which, because I am alive, is all the damn time). All that is understandable and fine, but this is also a time of additional emotional challenges brought on by the state of uncertainty, fear, anxiety, outrage and despair that our national political situation is creating. Every day seems to bring a fresh new worry or upset (or sometimes several), and even though I know I could just make like an ostrich and ignore the news, it’s hard to look away, to not at least bear witness even if I can’t summon the spoons to act. I know I’m not alone here—there are many, many people all around me that feel emotionally battered and exhausted from this same climate—but I’m finding it especially difficult to handle both my personal trauma and our communal trauma with a still-relatively-limited number of spoons. I’m impatient—I so badly want to be “all done” with all this recovery process and back in the cheerful, optimistic, enthusiastic, motivated, energetic mode I prefer, but I’m just not consistently there yet. I feel like the world outside my house is a rapidly devolving mess that urgently needs caring responsible people to fix it, and that I have to justify why I’m still floundering around in this depressive place. I find myself worried about being judged for not doing enough, for not improving fast enough—though I am pretty sure that it’s only me that’s doing the judging, not anyone else. (Why I am so judgy and hard on myself is a whole other topic, one which I have explored in therapy for many years and am still working on...suffice to say that during times of low resilience and not enough spoons, one’s chronic issues tend to get inflamed more easily.)

So what do I do with all this? (Apparently, I write a blog post so I can play with metaphors...) Seriously though, I think the first step is acknowledgement and acceptance of how it is: that emotional processing takes time and that I am still low on spoons of all kinds. Then the next step is a continual practice of mothering myself in a loving way, trying to be both gentle with and forgiving of myself during this period, which after all is hopefully temporary (God willing and the creek don’t rise.) Then after that I need to start being strategic about how to conserve and regenerate my spoons. Now is not the time *for me* to Do All The Things, or even most of the things. (Basic adulting and parenting excepted.) As I apparently reminded myself way back in 2011 (before I was even half as challenged as I am currently!), now is the time for practicing, prioritizing and pausing. I can be the change I want to see in the world, but I also have to respect and honor the place I’m at and the priority of self-care. (Oh hi, Oxygen Mask Theory, here you are again. Come on in and rest a spell, I made up the bed for you.) Fallow time is important for healthy growth, even for people who have plenty of spoons to spare. I can make more spoons for myself by resting, by making art and spending time around like-minded, positive, loving people. These are not indulgences; they are part of the process, part of the practice. 

Practice, practice, practice. Isn’t that the challenge and the privilege of living? As someone who is particularly grateful to still be alive right now, I’m going to choose to see all this opportunity for practicing my lessons as a good thing, even though it doesn’t always feel so good. No rainbow without rain. No mud, no lotus. Just keep swimming.

I’m a few days late getting this traditional birthday blog post up this year, because there was a lot going on for my birthday and then I got sick (which I refuse to take as an indication that I overdid it around the birthday shenanigans...it is after all seasonally appropriate and I have been around a lot of people). Today I’m finally feeling better though and ready to contemplate this dual anniversary as I do every year and see what it feels like this time.

For those just now coming to the party, my birthday is also the day I got diagnosed with cancer...the first time, back when I was 23. That makes this year my 25th anniversary of the day my relationship with my body and my mortality abruptly changed. 25 years is a nice round number and worthy of celebration, though it would feel nicer (and more victorious) if there hadn’t also been this new diagnosis and cancer saga part 2 that I have been dealing with for the past year-plus. It’s become interestingly complicated to do this yearly philosophizing now that there are two cancer-versaries to contemplate, but I still like the dramatic dichotomy that this day of transitions from one state to another (from unborn to born, from healthy to ill) presents.

I do still feel a sense of victory, of having made it this far after the initial shock and upset of that first diagnosis. But that sense of victory is tempered now with the reality that life is complicated and the lesson that victory often comes at a cost (which sometimes takes a lot longer than expected to manifest). I can no longer see my life as divided into only three phases, pre-cancer, cancer treatments and post-cancer survivorship—my survivorship status is now no longer something I can confidently assume will not change, since it already has changed once, from cancer survivor back to cancer patient and then back to survivor again. Don’t get me wrong, I’m humongously grateful for and pleased at being back in the survivor identity after a tough second go-round, but the very fact that the pendulum has swung back and forth between having and surviving cancer an additional time makes me have to acknowledge that it could certainly do so again. (In fact, it is more likely to do so again than it once was.) I have to constantly be able to hold two possibilities in my head and heart: on the one hand, that I am free, that I have fought the good fight and triumphed and cancer has once again vanished from my body, never to return because we have salted the earth quite thoroughly (and will continue to for years to come, just in case); and yet on the other hand, that treatments for cancer can sometimes cause cancer, as they did in my case, and that my body seems to be a fertile ground for cancer (as evidenced by it popping up at least twice now that I know of), so even though we have done all we can to prevent recurrence, I cannot be certain that it won’t happen. Holding two opposite things simultaneously and being comfortable in that “gray area” of uncertainty is something I learned to do back in the first go-round with cancer, but now I’ve had a chance to repeat the lesson and it is even more nuanced and complicated. I would say that the ability to live in the gray is one of the hallmarks of maturity, so I guess I would also say “yay me” that I have made it far and long enough to even mature.

Boulder In the Meadow (original painting by Julia Dvorin with cable tie overlay by Emily Dvorin)One last metaphor (because it wouldn’t be Parentheticals without torturing a few metaphors) that I’ve been thinking about in regards to this cancer-versary and the whole double-cancer saga I now possess is that of the Boulder in the Meadow. This is a metaphor I came up with after another, non-cancer experience to explain how it feels when things change abruptly, but it certainly applies here too. Imagine that your life can be compared to a beautiful forest meadow: open, wide, flat, with lush grass and beautiful little flowers blooming here and there. Perhaps a stream trickles through it, and little fish and frogs live in that stream, and the meadow grass is home to butterflies and hummingbirds and lizards and mice and insects—a whole happy ecosystem. Then one day out of the clear blue sky a giant stone boulder unexpectedly falls smack into the center of the meadow. It rips up the ground, crushes a bunch of grass, and wreaks havoc on many tiny creature lives. The stream now has to divert around it. And it completely changes the view of the formerly flat, open expanse—even though the boulder’s fall has not affected the entire meadow, you cannot any longer look across the meadow and not notice it. It is the single most obvious feature of the meadow now, and it cannot be changed or removed. Over time, things in the meadow eventually return to some sort of equilibrium, and the boulder is incorporated into the ecosystem of the meadow. Grass grows around it, flowers appear in its cracks and fissures, creatures take refuge in its shade. The meadow is still beautiful, but it will never again be the same open, expansive place that it once was. You can’t dismiss the boulder, or wish it away, or pretend you don’t see it. You can mourn the past, and remember fondly the way things once were in the meadow, but eventually you must accept the boulder as something that will always be there. Then you can find a way to view it as positively as possible, and choose to focus on the beauty that is still present.

So in this cancer-saga context, I now have two boulders in my meadow. I’ve had 25 years to incorporate the first boulder, the one that so radically changed my meadow’s topography. It’s nicely weathered and worn now, and has certainly made things more interesting. I have accepted it as an ongoing feature of my meadow, and even grown to appreciate its gifts. But this second boulder—it landed so close to the other boulder, and it’s even bigger than the first one was. It did more damage to the meadow than the first one, and in some ways it is harder to imagine that its presence will ever feel integrated (even though experience with the first boulder should be reassurance that it will, given enough time). It makes me once again remember and mourn the flat meadow that once was, and even the single-boulder meadow that once was. I know that acceptance and integration is possible, and indeed the process has begun, but it isn’t finished yet. Of course, it may never finish—the meadow is an ever-evolving place. But that second boulder still bothers and distracts me with its disruptive, obvious presence.

I wish I could hurry this process of acceptance and integration along, and get back to thinking more about the meadow than the boulders. But every day I still see my scars and feel the numbness and oddity of my new “foobs” (fake boobs) and it still bothers me. I still struggle with feeling like my memory and my energy are not back to “normal”. I yearn—oh how I yearn—to put this latest cancer experience behind me and move on, and I am impatient with the fact that I am still dealing with the aftereffects. However, if there’s one thing that the first cancer saga taught me, it’s that recovery takes time. A long time. I actually think it’s an ongoing experience, not a destination. So there is no “putting this all behind me”, really. There is only the journey, round and round the meadow, looking at things from all angles, appreciating what is good and holding what is not good with as much compassion as I can muster.

It’s taken me a couple extra weeks to actually write this down in any coherent way, but I’ve been thinking a lot about my intentions/resolutions for this 2017 year, and I think they are finally coming into focus. I think I am coming to accept that this year is *not* a year for proactively taking on new big challenges and aspiring to grander activities; I still have more recovery and processing to do before I feel like I will be “free” enough to seek out and accomplish big projects or big changes to my intentional life design. I still do feel a pressure to accomplish and help (help people, help our country, help change the world to be a better place) but I also feel a resistance, a need for taking my time and continuing with the self-care (which is mostly not physical anymore, which makes it a little more complicated). I think it is so important to be politically active and make my voice heard and help others make their voices heard too, but I still have to be conservative with my spoons so I don’t burn out or fall into despair and depression. So I want to focus on “small ball”, by which I mean working at a more local, personal level to live my values and operate as the kind of person I want to be in my marriage, my family, and my communities. I want to be a role model and really commit to the idea of “be the change you want to see in the world”.

So what do I believe in? What are my values? What kind of world do I want to live in? Maybe it would be helpful to list some of them for reference.

  • I believe that people are more important than things. I prioritize spending time with people and making them happy over most everything else.
  • I believe everyone—yes, everyone—has equal value and importance. Like Jewish tradition teaches, saving one person is like saving a whole world (and therefore hurting or destroying one person is like hurting or destroying a whole world.)
  • I believe that for the most part, diversity and differences make us stronger and more interesting and should be celebrated and eagerly sought out, not ignored or devalued.
  • I believe in community and collaboration, because we are all connected. I think it does indeed take a village to raise our children and make our neighborhoods clean, safe and nurturing.
  • I believe that people are intrinsically good at heart and have the same basic needs for respect, safety, love, connection, comfort, creativity, meaning and purpose.
  • I believe we humans are the stewards of this one unique planet Earth and it is our individual and collective responsibility to live in a way that supports and protects our global environment for ourselves and for all future generations.
  • I believe in tikkun olam, the healing of the world, and in partnering with each other to make the world a better place for all, not just some.
  • I believe in justice and the application of appropriate consequences for wrong actions, not as punishment but as encouragement and scaffolding for learning how to do things right in the future.
  • I believe in peace.
  • I believe in treating others as you would like to be treated.
  • I believe that each one of us has amazing gifts and important stories to share, and that we should both share our own gifts and stories and take the time to appreciate each other’s gifts and stories.
  • I believe in optimism and hope, even in the face of difficulties.
  • I believe in honesty.
  • I believe in self-reflection and personal growth, because the more we understand ourselves the stronger and more resilient we get and the more we can empathize with/connect to other people.
  • I believe in treating others (and myself) with kindness and respect.
  • I believe in play and creativity and trying new things.
  • I believe in being of service.
  • I believe in the “oxygen mask theory” where you need to take care of yourself first in order to then take care of others.

I’m sure there are more things I believe in, but this is a pretty good list for now. If I can keep reminding myself to live my life according to these beliefs I think I’ll have a successful year.

Once again I am stealing some time away amidst the familiar familial hurly-burly that is our Stinson New Year’s tradition to do some reflection on the past year and record it for posterity. 2016 will definitely be a memorable year in my book, mostly for purely selfish and personal reasons (helloooo cancer! And also, goodbye!) but also because this past year has definitely felt like a turning point in history, especially with the election of Donald Trump and all the accompanying upheaval in American life. We are certainly living in some interesting times and I am doing my best to stay solid in my values and my determination to keep loving and creating and making the world a better place for everyone.

But before I get too far down the rabbit hole of predictions and solutions for what kind of looking glass country we seem to be dealing with, let me go back to the point of this post, which was to record and reflect on what happened to ME in the year just past (because after all this is my solipsistic storytelling space). With the able assistance of my calendar and my photo log, I ought to be able to at least remember the highlights in vaguely chronological order.

January started off quietly, which was definitely welcome after so much upheaval (cancer surgery and treatments, holiday hoo ha) in the previous months. For my birthday weekend Josh and I got all dressed up and went to the Edwardian Ball in SF for two nights with a bunch of friends and had a terrific time. A few days later we also went to see the Wood Brothers in concert but it turned out to be kind of a bummer show since the band was sick. The week after that I had my first chemo treatment, at which I did not have a terrific time but at least it turned out to be less horrible than I had so fearfully anticipated.

In February I got my hair cut short in anticipation of its impending demise, which turned out to be a good idea since it started coming out in handfuls right around Valentine’s Day while we were at Dundracon (one of our annual gaming cons here in the Bay Area). After Dundracon we had a gaggle of teens over for Eli’s traditional birthday gaming sleepover. By the time I got to my second chemo treatment in February I was pretty much bald so I began to fool around with wearing different brightly colored wigs (I had blue, green, pink, auburn and purple but my favorite was the purple). One thing I was determined not to let chemo spoil was my trip to Joshua Tree in late February for Pantasia (a handpan gathering). I drove with my teacher Judith and a couple of her friends and we all shared a room and even though I was tired and queasy a lot of the time, I had a truly amazingly great experience there. I got to geek out and play some soul-lifting music with some incredible people in a gorgeous setting (including the trippy and wonderful Integratron nearby), and I even won the lottery, which meant I could acquire a new handpan (my CFoulke Aether, which is still my favorite). I made new friends and grew as an artist and I can’t wait to go back again this year, especially now that I’m feeling so much better.

In March I had my last two chemo treatments so that’s pretty much what I did all month. Friends and family were wonderful during my chemo treatment months and brought us food and helped schlep the kids around, although I was also able to keep doing some of my usual activities. I did have to let go of my desire to go to FOGcon (local writer’s con that I always go to) and instead stay home and lay low. I did manage to go see my brother and his friend Matej play a fabulous, intimate concert as the Pull-String Duo at the Maybeck House in Berkeley, participated in the Purim shenanigans at our synagogue, and helped throw Isaac a sleepover “Pi Party” for his birthday. My last chemo treatment was the last day of March and I celebrated with bubbles.

At the beginning of April I was still feeling pretty crappy trying to get over the final chemo treatment (plus I got a cold), but not so crappy that I couldn’t start making freak flag blanks and getting ready for Maker Faire (which I was determined not to miss because of cancer treatments). Josh and I stole away for a rejuvenating spa day at the Sonoma Mission Inn, I went to a party at Adrienne and Jim’s house where I got to hang out with my Dickens Fair buddies, and Mom and I took a trip to the De Young Museum for an art day and to see the “Flowers to Art” exhibit (which was awesome). We celebrated Passover with family, which was lovely as always. The Lucas Valley hills were amazing in springtime so I went for walks with various people at various times and even shot a music video with my brother where I played handpan while surrounded by green and wildflowers (it was very pretty). The biggest event of April though was that at the end of the month I had double mastectomy surgery, which though physically challenging  was even more challenging to deal with psychologically. But I got through that (again with the help of my wonderful family and friends) and was feeling pretty good after about two weeks.

Other than recovering from surgery, the two big things that happened in May that I was determined to do were Maker Faire and Wiscon. I am happy to report that I managed to participate in both. Once again I had a terrific team of friends who helped me run the Fly Your Freak Flag High booth at Maker Faire, and it all went really well (it certainly helped that I had run it so many times before and so I kind of had a system down). I even won Best In Class/Editor’s Choice awards which made me feel glad I’d made the effort. It was also good to be at Wiscon and re-activate my dormant writer identity by being around all the smart geeky people talking about all the craft and philosophy of writing...one thing the chemo definitely took away from me was the brain-power and discipline necessary to write, but the desire was still there and I was glad to be feeling better enough to want to start writing again. (Though as it turned out I didn’t actually start writing fiction again until Fall, because things got too distracting with all the cancer treatments and self-care, and then Burning Man.)

June was a pretty good month for the most part. I continued to run around doing lots of self-care appointments and all the usual end-of-school stuff. Our nephew Jonah graduated from high school and we went to Chico for the weekend to help celebrate that momentous occasion. The following week Isaac graduated from our beloved elementary school, which marked the end of 10 years of our time at that institution. I was sad to say goodbye to that place and those people after so many good experiences there, but it was also kind of exciting to be entering a new era. Isaac and I went to the Pirate Festival in mid-June, and then a few days after that our family foursome went on a quick 6-day trip to NYC (Josh had a conference to go to and the rest of us decided to tag along). We stayed in the East Village and had lots of fun being all touristy (Empire State Building, 9/11 Memorial, 1 World Trade Center, the Met, Central Park, Statue of Liberty, etc), watching Broadway plays (Lion King and Les Miserables), eating delicious food (mmmm bagels) and visiting friends. We walked a lot and finally taught our kids how to ride the subway. We packed a lot into a short time! After we got back we took the kids to see one of our favorite bands, Flight of the Conchords, in concert. We had a flat tire on the way there but still managed to make it in time to see most of the concert. At the very end of June I went back to a different UCSF campus to have my DIEP flap breast reconstruction surgery, which went successfully but was definitely tough to recover from (the toughest so far).

I declared July the month of Julaxing, where theoretically all Julia would do was relax and recover from reconstructive surgery (Josh and the boys were all caught up in Adventure Gaming Camp). Luckily for at least the first three weeks or so I had lots of people visiting and bringing food and helping entertain me while I sat around and healed up (which was harder than it sounds).

In August I helped my mom with her booth at the ACC Craft Show, and then the week after that the kids went off to sleepaway camp once Adventure Gaming Camp was over and Josh and I snuck away for our traditional belated anniversary trip to Ashland to see some great plays and eat some yummy food. Then we came back and hit the ground running trying to get ready for Burning Man. (Josh built a new water bar for our camp, which I helped with a little bit, and I made myself a new scallop vest and an art piece about my breast cancer saga to burn at the Temple, but mostly there was just the usual craziness of prepping and packing). Isaac started middle school, and then Josh left early to help with build and I drove up to the burn with Mom (who was back for her second year.) I had a really great burn...saw lots of art, danced and partied and met new people and gave away lots of things. I played my first handpan concert and got to spend some important “year of living cancerously” processing time at the Temple, which helped put a lot of things in perspective.

In September Eli started his second year at The Marin School and got his braces off. He’d also cut his long hair over the summer so he had a whole new look. We finally got our foam roof recoated and some new electrical work done (it was a big project involving coordinating with multiple tradespeople). I helped mom with her booth at the Mill Valley Fall Arts Festival. In late September Josh and I went to South Lake Tahoe for the weekend to celebrate with Josh’s family at the wedding of his cousin Robert and Lisa, then came back to visit with my extended family in honor of my cousin Rich and his wife Kim and their kids who were in town from Colorado.

In October we celebrated the high holidays with family (and I did a lot of reflecting on the one year anniversary of my cancer diagnosis). Josh and I saw Ani Difranco in concert. We helped set up and hold down the Pink Heart Camp space at the SF Burning Man Decompression event. We met up with Dave and Keri and Zinnie in Placerville at the Hangtown Music Festival, where we dressed in fun animal costumes and saw lots of great music including the Wood Brothers (actually only two out of the three Wood Brothers, as the third was out sick, but it was a great show anyway). Then I flew out to Columbus, OH for the World Fantasy Convention. I got to hang out with my writer buddies yet again and this time I actually even did some writing, which felt great. I got back from that just in time for Halloween, although this year I hung out at home with the teenagers watching movies and handing out candy rather than running around with Isaac and his buddies trick-or-treating.

November was the start of Dickens Fair workshops and performances, and my friend Robin came to visit for a few days. After she left it was finally election day and I think it’s safe to say that most of the country was pretty surprised and slightly more than half the country (including me, the one who was positive we’d finally have our first woman president) was pretty upset that it turned out that Donald Trump had won the election through the electoral college (not the popular vote). While still reeling from the election results and what felt like a new, more frightening and less friendly America, I went in for my final “fix-it” surgery to finish out the breast reconstruction. (Compared to the previous surgery, this one was a cakewalk—I didn’t even have to stay overnight in the hospital and I was back up and at it relatively soon afterwards.) Later in the month we went to go see Cirque du Soleil (Luzia) with our friends Janet and Todd and Audrey and John, and as usual it was an amazing show and we had a fantastic time. We had a quiet couple of days of Thanksgiving at my parents’ house. The only other thing of note this month was that I fortuitously acquired another new handpan (an original 1st Generation Hang that had been retuned to the Kaffa scale, which I love).

In December Eli and I finished out Dickens Fair (we had a great run overall, and I especially enjoyed getting to model 4 times for the Dark Garden corset windows and leading my own shanty during the Paddy West Shanty Hour) and we went to go see our friend Mark and the SF Gay Men’s Chorus sing their annual holiday show. Josh and I once again threw our annual Black Turkey Party—this year was the 20th Annual, which we celebrated by awarding a turkey trophy and knit, turkey-shaped “crown” to our friend Rebecca, who had attended all 20. We took the kids and met up with a bunch of friends to see “Rogue One” (the new Star Wars movie) at the Corte Madera Cinema, as is tradition. We celebrated Christmas Eve at Josh’s parents’ house, and Christmas Day at Brandi and Quinn’s with the extended Archer/Gomes families. And we ended the year as we always do, with my parents and my brother’s family out at Stinson Beach.

Looking back at my admittedly incomplete and largely on-the-bright-side list of all the big things that happened in my life this year, I am struck by the fact that even though there was a lot of difficult and unhappy stuff (and I haven’t even gone into the fact that 2016 also saw a horrible humanitarian disaster continue to develop in Syria, the exit of Britain from the European Union, the massacre in Orlando, far too many police shootings of innocent black folk, some huge natural disasters, a huge fire in an Oakland warehouse, and what felt like an unusual amount of celebrity deaths...Bowie, Prince, Alan Rickman, Gene Wilder, Muhammad Ali, Leonard Cohen, Fidel Castro, George Michael, Carrie Fisher, Debbie Reynolds, and many more), there was also a lot of good stuff: trips and adventures, time with new friends and old, music and art and food and celebrations of all kinds. I feel I can say without exaggeration that on the whole 2016 was one of the hardest and most challenging years I’ve ever seen, both for me and for our country and our planet, and I am more than happy to wave farewell to it as we begin afresh in 2017. Here’s hoping that this newly-minted year will be kinder and gentler for us all than the last one was.

This bounty is no longer quite so largeA year ago today I had my first breast surgery (a lumpectomy and reduction). A week ago today I had what I fervently hope is my last breast surgery (tweaks to finish the DIEP flap reconstruction I had back in June). So I have been this new, smaller-breasted person for a whole year now. It still feels strange and unreal, though I’m finally getting more used to it. Being done with the reconstruction also brings with it a mixed set of feelings: on the one hand, “yay, that’s it, I’m done!”, where I’m happy to finally be through all the trials and tribulations and relieved to be relatively pleased with the results; and yet on the other hand, I also am feeling “oh, that’s it, I’m done?”, where I’m realizing that the form I’ve got now is what I’m going to have for—God willing and the creek don’t rise—the rest of my life. And it isn’t perfect, as it never is, but whatever my minor disappointments, now I must begin the journey back to body acceptance and self-appreciation all over again. Having done body acceptance work slowly but surely for decades already, it’s a little disheartening to have to do it again (and so relatively quickly). Do it I shall, with as much focus on the silver linings and bright sides as I can manage, but today is an anniversary where I mourn, just a little, the way things used to be back before I was a “modified” human.

The other thing that I’ve been mulling over the last few weeks (in between all the election hoo ha and the emotional rollercoaster that has created, which will have to be another post), is the “now what” feeling of existential angst that I mentioned in the last post. Other than the next 5-10 years of prophylactic hormone therapy, I am officially done with the active phase of my treatment. I'm excited about that, oh hell yes I am...but I am also feeling a little discombobulated and lost. I feel like a wild animal in a catch and release program—I got caught, I thought I was going to die, but now here I am thrust back out into the place where I started (more or less) and not sure about how safe it really is anymore or whether I truly belong there. Don’t get me wrong, I vastly prefer it out here to back in captivity, but I’m uncertain about what to do and where to go next. I guess I’m just going to have to put my focus on the first half of the “patient patient” moniker while I move away from the second, and see what this crazy, complicated, contradictory, unpredictable, and ever-interesting universe throws my way next.

Monday was Rosh Hashanah, the Jewish new year (5777 on the Jewish calendar). I went with my family to services at our synagogue, where we helped greet and hand out prayerbooks to people, sang, prayed and listened to moving poems, personal stories and the amazingly loud “wake-up” blasts of the shofar. I even chanted two verses of Torah in front of the whole congregation (this is more impressive than it sounds, considering I don’t read Hebrew and had to memorize the whole thing, including the intricate up-and-down traditional melodies). After services, we went out to lunch at our favorite bagel store.

I mention this because this is exactly what we were doing last year on Rosh Hashanah when I got the voicemail from the Marin Breast Health Center telling me that the test results from my mammogram re-do were back and they wanted me to call them (it’s never good news when they ask you to call back to hear test results instead of telling you right then and there). If you’ve been reading this blog over the last year, you know the rest of that story (and if you haven’t, well, spoiler alert: it wasn’t good news). In this time of anniversaries (one year since my breast cancer diagnosis, my triumphant return to Burning Man after the Year of Living Cancerously) and of High Holidays-inspired introspection and t’shuvah (re-turning, redemption) I’ve been thinking a lot about how to put this past year in perspective and what I want from the year ahead. This post is an attempt to record and reflect on some of this t’shuvah work.

So now it’s not only a new year, it’s also time for a new stage of my life: post-cancer. It’s the time when I get to switch from being a patient patient to being a survivor. (Not that you ever really are “cured” and of course I’m still in the recurrence danger zone for the next five years, which is why all the chemo and hormone therapy, but the active phase of treatment and recovery is now over.) On the one hand, I am enjoying being able to celebrate surviving all that I had to endure and I am excited to finally be able to put a confident, weighty period at the end of the sentence “I had cancer and went through treatments and now I’m better.” Yet the other hand is busy holding the question: “so what do I do now”? That’s a big and heavy question, and the answer isn’t necessarily obvious.

Do I just flip cancer a jaunty middle finger salute and go right back to where I left off, and try to resume as close to the exact same life I had before this disruption came along? After all, I have spent a lot of the last ten or so years on intelligent life design and identity work around who I want to be and what I want to do with my one wild and precious life, and I was pretty happy with the way things were going and who I was being when this cancer detour came along. Maybe the kind of t’shuvah (returning) I want is exactly this, the relief and reward of getting back to a previous, hard-won equilibrium. There’s a lot to be said for this path, but...I’ve also been here before. The last time I had cancer, when I was in my 20s, and I hit this “survivor” phase, returning to my old life as much as possible was exactly the path I chose. I had just moved to a new city and started grad school when I was diagnosed, and when my active treatment phase was over, I decided that I wanted to go right back to school afterwards (well ok, I had the summer off, but still). I felt like it was important to prove that “cancer can’t stop me!” and honor the choices I had already made. After a long and scary time of not knowing what was going to happen and submitting to whatever medical science said I had to do to survive, I wanted to return to the comfort of the familiar, the chosen. So I did...but even though I was able to use my MA thesis to do some important processing, grad school and the academic life just wasn’t as satisfying as I’d hoped it would be. I had changed, and my priorities and interests had changed. Perhaps some of that was inevitable (after all, I was only in my mid-twenties, and for most people that’s a time of change and exploration), but I think some of it was also that, just like Frodo at the end of the Lord of the Rings books, I discovered that after certain life-changing events, you can’t really go home again. Because even if you do go home, you don’t fit neatly back in place, and that can get uncomfortable after a while. So after struggling with transformation and fear of failure for another few years (!), eventually I took my MA (and my new husband) and returned back home to the Bay Area to figure out what was next. And life has definitely moved in some interesting and unanticipated directions ever since (though I must note that it has also spiraled back to familiar themes and choices as well...because even though you can’t fully go home again, you do sometimes get to go back and visit for a while).

But if I don’t go right back to the way things were—the way *I* was—before all this came down, what other path can I choose? I guess the opposite of wanting to stay the same is embracing and exploring transformation. But there are little and big kinds of transformation, and there are the transformations we choose willingly and the transformations that we are forced into—and there’s the rub. Change just for the sake of change is not especially attractive to me at the moment, but I’d be dishonest if I said that everything was perfect before and that I have no more interest in evolving and growing and finding new meaningful activities, adventures and work. Whether I wanted it or not, things are different now and thus I have inevitably already transformed (and will likely continue to do so) to accommodate. Life isn’t static, even if we choose to re-turn to previous patterns. But how much transformation can I tolerate, let alone enjoy, right now?

I guess what it comes down to is choice. Transformation is desirable *if* it is a chosen transformation. I *chose* to go to grad school, I *chose* to be a wife and then mother, I *chose* to be an entrepreneur, I *chose* to be a writer and an artist and many of the other identities I carry. I did not choose to be a cancer patient or a cancer survivor. I did not choose to lose my hair or my breasts or my menses, except in a “lesser of two evils” kind of way because above all I did choose life as my highest priority. But at least in a life-or-death situation the choices are clear(er), albeit not always palatable.

Now that I am released (however temporarily) from the tyranny of cancer treatments and the cancer patient identity, I have the opportunity to make my own choice about what I want to do with myself and my life, but the pros and cons of my choices are less clear cut. I want to make sure that whatever I choose to do now is truly right for me (or at least right for the me that has arrived here in this moment), and not just another comforting attempt to reset back to an earlier version of me. But surviving existential threats does make one go back to asking the big existential questions like “what is my purpose?” and “why am I here?”—except in my case now it’s “why am I still here?”. And this time of t’shuvah makes me ask “for what was I redeemed? What redemption can I now make?” If there really is some sort of destiny or design to our lives, maybe that means I can find some meaning and context for my life by transforming what I thought (however imperfectly and arrogantly) my purpose was before into something new that I never would have imagined (or had access to) before this latest bout with cancer came along. I can at least keep my eyes and ears open to what that might be, knowing that standing at this crossroads is a gift and that I have at least some limited choice over which direction I pivot.

So what will happen now? What direction will my life go now? I really don’t know. I do know though that the more I feel like I can choose the things I spend my time engaging with the better it feels, at least for now. So I am going to go back to the familiar priorities that so far have given my life meaning: my family, my communities, my art, and making the world a better place. But I’m also going to be open to whatever comes my way and stay alert to the possibilities of transformation. Perhaps transformation will come slowly and calmly, or it will come with another shock and bang. Perhaps it will not come at all, or only be understood in hindsight, once I am way farther along. Regardless, I’m grateful to be here pondering these questions and the shape of my life’s story arc for yet another year, and I’m feeling positive that this coming year will be full of good things. Bring it on, 5777!

Julia's hat on the dash as we waited in the Exodus line

Monday we got up as early as we could and spent three or four hours striking and mooping our own camp area and loading up the van and the Uhaul with all our stuff. We said goodbye to all our remaining camp mates and then Mom, Josh and I caravanned together with Kathy and Anthony to the Exodus line. We were expecting it to take a long time to get out and at first we were happy and perky hanging out in line with our friends and other random folks around us, but after hours and hours and hours of that we got tired (like you do) and cranky. I spent time writing in my journal and listening to BMIR. We didn’t hit pavement until nearly 9pm, which meant that our traditional stop at the Black Bear Diner in Sparks was not going to work (they closed at 10). So we decided to go back to the GSR to get some food (casinos are open all night, after all) and maybe see some other Pinkies there. Once we got into cell range Mom called Dad and we called home and spent a nice long time (maybe an hour?) talking to our eldest (youngest had already gone to bed) about what had been going on for him in the first week of school, which was great.

We got to the GSR around 11 and changed clothes and wiped down in the restroom there and then promptly ran into Alex, Lionessa, MissyKat, Halcyon and Millie. We had a late dinner with Kathy and Anthony and Millie, and then eventually got back on the road around maybe 2am. We were all tired but especially Josh, who’d been driving most of the way. I took over from him for the last hour or so, and had to fight to stay awake, especially when we hit morning rush hour traffic around Vallejo. We got home just before 7am, and the kids were already up and about getting ready for school (though my poor Dad was asleep on the couch waiting for us to get home). It was so great to see the kids (and they were happy to see us too) but it was also great that they left to go to school and we could finally shower and fall into our own comfy bed for a couple hours.

And now, as per custom, it’s time for the bullet list summary of lessons learned and final thoughts about this year’s burn:

  • I’m just so stoked to be here. Really.
  • Everything is going to be okay in the end. If it’s not okay, it’s not the end.
  • Burning Man has always felt like a sort of New Year’s celebration to me, but it was doubly so this year after having lived in cancer-land for nearly the entire year between the last burn and this one.
  • I now have a pile of pretty solid proof that no matter what happens, I’m still me, and me is a bright expansive powerful supernova. It’s my nature and my privilege to shine and provide an example of said shining to the world.
  • While it’s true that you could sum up the experience of being at Burning Man by saying “you just can’t make this shit up”, you could also sum it up by saying “that’s a giant fuck-ton of shiny shit”. Both statements are a vain and somewhat silly attempt at distilling years of experience and squeezing way too much meaning into something short and pithy. (Which is ultimately an impossibility, but it’s fun to try.)
  • PHamily is real and it feels really good to be a part of it.
  • Savoring leads to happiness. Savor more, be happy more.
  • Cold treats in the desert never get old.
  • Short hair on the playa is certainly more convenient and easier to deal with.
  • Ritual is a powerful tool for healing.
  • Suffering cracks us open and lets the light in.
  • Try pitching next year’s Freak Flag making workshop as (also) a “chill and color” activity.
  • Playing handpan on stage is pretty fun. I would like to do it again, but prepare a bit more next time.
  • I really want to make a wind-art freak flag sculpture for Burning Man next year or the year after.
  • No mud, no lotus. If I hadn’t gone through so much crap during my year of living cancerously, I would not have had such a particularly sweet burn this year.
  • Yes, apparently I *am* Lady Luck. And now I can look the part whenever I want to.
  • Foam shower + coconut oil + cookie + dancing in the company of other happy clean burners is a recipe for an awesome good time.
  • The art is amazing, the dancing is fun, the absurdity is awesome, and the creativity is inspiring, but it is the people that make Burning Man so compelling and keep me coming back year after year.
  • Burning Man may be only a week, but the best parts of it can live on 24/7/365 in the way we choose to be in the world and in the way we treat each other (and ourselves).

[Da Vinci's Workshop Intro]

[Da Vinci's Workshop Part 1]

[Da Vinci's Workshop Part 2]

[Da Vinci's Workshop Part 3]

[Da Vinci's Workshop Part 4]

[Da Vinci's Workshop Part 5]

[Da Vinci's Workshop Part 6]

[Da Vinci's Workshop Part 7]

[Full Set of My Da Vinci's Workshop Pictures on Facebook]

Sunday we did indeed get up ridiculously early and jump right in to hours of camp teardown. I mooped and schlepped and helped write down the inventory of one of our two camp storage containers (which both got absolutely crammed with stuff in every smidge of space). I worked on that until mid-afternoon, after which Josh and I tried to consolidate and pack up as much of our own stuff as we could in preparation for leaving the next day.

The Temple burningAround 7:00 we got a few people together to head out to see the Temple burn. As I already mentioned, that burn was particularly lovely and meaningful, although I’d done much of my processing already. I was especially drawn to/impressed by the smoke angels (vortexes or tornados of smoke that formed at the fire and “marched” across the playa in a line until dissipating into the air). They started at the Temple and kept leaving it in a beautiful procession, one after the other. I also loved watching all the embers dance away up into the sky, billows and puffs and clouds of tiny glowing sparks all moving this way and that until they winked out. I was glad to feel the sense that all the grief and loss of the last year were puffing away so beautifully, and to put a ritual sense of closure on my year of living cancerously. I took out my letter to myself that I’d been carrying around and re-read it. Ryan, who was sitting next to me, asked if he could read it, so I let him, and then Josh asked to see it too, so I let him read it too. Really the whole thing was beautiful and satisfying. I would have stayed longer but at a certain point everyone else with me wanted to go so I just let that desire go along with everything else I had let go of that burn and went back home to Pink Heart, where almost everything was transformed also. Our fluffy pink home during the week was gone, all packed up, vanished like the beautiful temporary love dream it was; but our little silver yurt and shade patio were still there. (Hmm, are there metaphors here? Yes, probably, but I will let you imagine your own.)

[Da Vinci's Workshop Intro]

[Da Vinci's Workshop Part 1]

[Da Vinci's Workshop Part 2]

[Da Vinci's Workshop Part 3]

[Da Vinci's Workshop Part 4]

[Da Vinci's Workshop Part 5]

[Da Vinci's Workshop Part 6]

[Da Vinci's Workshop Part 8]

[Full Set of My Da Vinci's Workshop Pictures on Facebook]

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